Photo: Courtesy Matt Sooter
Courtesy Matt Sooter
Adalynn quickly captured the heart of the nation as herparents tried desperately to save herafter doctor’s found a massive tumor on her brain stem in November 2016. Adalynn’s journey came to an end on June 3, and her older brother Jackson was at her side,stroking his little sister’s hair in her final moments.
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He added to PEOPLE: “It was a sweet moment, but not unexpected. Jackson has always been great with her and took very good care of her. He’s still a happy little boy, but he misses her.”
Adalynn, who the family called Addy, passed away at 1:04 a.m. that morning, 18 months after doctors found a tumor growing on her brain stem and diagnosed the girl with diffuse intrinsic pontine glioma (DPIG).
“It crushed us,” Matt previously told PEOPLE of the moments he and Chandra first got the news. “To instantly feel so helpless is something no one should ever have to feel.”
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For nearly a year, they took the little girl to Monterrey for treatment and Matt says a single trip can last up to 12 days. Travel and medical expenses have cost the family more than $200,000. Before her death, Matt called Adalynn’s survival “purely incredible.” But, he added, that he knew her health was continuing to decline.
“We miss her terribly, but we’re also at peace knowing we did everything we could to try to help her and that she isn’t in pain anymore,” the grieving father previously told PEOPLE. “It was only, ‘See you later.’ We’ll see her again some day.”
source: people.com
